Upcoming Events


 
 
 

      Board of Directors

    Michael Church- Executive Director

    Gretchen Garie- President/CEO

    Jodie Donovan

    Carol Meenen

    Marcie Sewell

    Kimerly Coshow Ph.D

     

    Contact Information:

    880 Grand Rapids Blvd. Naples, FL 34120

    239-919-8287

    Movers & Shakers is a 501(c)3 Non-profit













    ONE TEAM! ONE GOAL! ONE VOICE!

    A Parkinson Disease Support & Advocacy Organization

    OUR MISSION

    Movers & Shakers is committed to the Support, Education, Outreach &
    Encouragement of the Parkinson's community through our Programs &
    Cooperative Network of Caregivers, Medical Practitioners, & Legislators
    to enhance the quality of life of those affected by this disease.


    Parkinson's Day of Action


    Parkinson’s Day of Action

    Wednesday, February 26, 2014

    On Wednesday, February 26, between 9:00 a.m. – 5:00 p.m. ET, Parkinson’s leaders from across the country will be on Capitol Hill.  Voice your support for Parkinson’s research and services by calling Congress on February 26!

    Join PAN by dialing the Capitol Switchboard: 

    202-224-3121 to be connected to your Senators
    202-225-3121 to be connected to your Representative

    It’s easy! Here’s what to say:

    1. My name is [YOUR NAME].  I live in [CITY, STATE] and I have/my loved one has Parkinson’s disease.
    2. The Parkinson’s community asks you to support a full repeal of the Medicare Therapy Caps and to increase funding for the National Institutes of Health, the Department of Defense Parkinson’s research program, and the Food and Drug Administration.
    3. I look forward to hearing from you concerning your support.  Thank you.

    Want to learn more about these topics before you call your Members of Congress?
    Here’s more information on the issues of Medicare Therapy and federal funding:

    Medicare Therapy Caps
    National Institutes of Health Funding
    Department of Defense Parkinson’s Research Program Funding
    Food and Drug Administration Funding

    Help Spread the Word!
    On February 26, we would love Congress to be talking about Parkinson’s disease all day long! Encourage your friends, family, support groups, and community to participate in the Parkinson’s Day of Action. We’ve created Day of Action Flyers, including state specific flyers, to help you spread the word to your network. Download your state flyer today!

    General Day of Action Flyer

    State Day of Action Flyers: 

    Alaska
    Alabama
    Arkansas
    Arizona
    California
    Colorado
    Connecticut
    Delaware
    Florida
    Georgia
    Hawaii
    Iowa
    Idaho
    Illinois
    Indiana
    Kansas
    Kentucky
    Louisiana
    Massachusetts
    Maryland
    Maine
    Michigan
    Minnesota
    Missouri
    Mississippi
    Montana
    North Carolina
    North Dakota
    Nebraska
    New Hampshire
    New Jersey
    New Mexico
    Nevada
    New York
    Ohio
    Oklahoma
    Oregon
    Pennsylvania
    Rhode Island
    South Carolina
    South Dakota
    Tennessee
    Texas
    Utah
    Virginia
    Vermont
    Washington
    Wisconsin
    West Virginia
    Wyoming

    Social Media
    To invite your friends and family on Facebook, click here!

    You can also help spread the word on Twitter! You can use the hashtag #pddayofaction and here are some sample tweets:

    Join @PANtweets in calling your Members of Congress on 2/26! ow.ly/t6WdU #pddayofaction

    I'll be calling my Members of Congress on 2/26 - the Parkinson's Day of Action! Join me! ow.ly/t6WdU #pddayofaction

    It's important that all PD voices are heard in DC on 2/26! Join me in calling Members of Congress! ow.ly/t6WdU #pddayofaction



     



     
     

    The 3rd World Parkinson Congress was held October 1-4 2013, but the awesome memories will linger on for quite some time.

    It seems a lot of us came away from WPC 2013 with many feelings... maybe the best of them would be RENEWED? HOPEFUL?!! EMPOWERED! ( that one is my favorite!)

    The blogosphere is lighting up, the FB status's are all a buzz with something positive that each of us brought home with us.

     I think my list would too be pretty long... Getting to meet Tim Hague the Canadian Amazing Race Winner who has Parkinson's and chatting with him and his wife while out to dinner.

    Getting picked up at the airport by Jill Ames-Carson & crew... So cool!

    Tom Isaacs and his rendition of “That's Life”.

     Launching our PDPALS!

     The overwhelming joy of seeing old friends and the joy of making new ones.  

    For me, the pride of being able to volunteer to work with the Parkinson's Quilt again. 42 Panels, 16 blocks each, with a story behind each one. It was the person who would shyly come up to us and ask us for help in finding their block, the one they made for their loved one who has since passed away. Or the woman who is now confined to a wheelchair but loved her shoes and that was what her quilt block was about was her shoes. Sometimes, I had to go and excuse myself to go cry a little... or

    a lot.

     It was the empowerment and pure joy of being able to be a part of the "Voices of Hope" Choir from Ireland, and the Mob Choir. The song, "Something Inside so Strong" still plays in the back of my head.

     

    The presentations that gave us hope that doctors and researchers were REALLY listening to US!! The ones that have this really nasty foul disease!!! and just maybe going to do something about it....

     

    Of course none of it would have been worth a hill of beans were it not for the fact that I was there with my wonderful husband, Michael J Church Sr. Words cannot express how he much he is the glue that right now is holding me together. Thanks sweetie!! Those are the things that I will keep in my heart for the next 3 years.... Until Portland in 2016!!!!

     

     


     



    The Power of Advocacy



    The Parkinson’s Action Network presents “The Power of Advocacy” – 
    an exciting panel discussion about how advocacy can make a difference for the Parkinson’s community!

    “Fewer than two dozen Members of Congress out of the 535 have any healthcare experience. So, they may have heard of Parkinson’s disease, but do they really know anything about it? You can communicate facts and figures, but it’s really important to build those relationships to educate.” – J.P. Paluskiewicz, Deputy Chief of Staff to Representative Michael Burgess (R-TX)

    In this video, viewers will learn:
    Why it’s important to reach out to your Members of Congress;
    How to ask for what you want when emailing, calling, or meeting with congressional staff;
    Why finding common ground and being realistic about the legislative process can help you get what you want;
    Why telling your personal story, and the impact a policy decision has on you, is so important; and
    How to follow up your meeting, phone call, or email effectively and get results!

    Panelists:
    James “J.P.” Paluskiewicz, Deputy Chief of Staff to Representative Michael Burgess (R-TX)
    Cynthia Rice, Vice President for Government Relations, JDRF
    Israel Robledo, Parkinson’s Action Network Texas State Director
    Lisa Shulman, M.D., Professor of Neurology, University of Maryland
    Mary Woolley, President, Research!America

    Moderator:
    Amy Comstock Rick, CEO, Parkinson’s Action Network



        Will you Sign the Parkinson's Global Pledge!!   

      Global Parkinson's Pledge

     


    We launched a worldwide appeal for one million people to sign the Global Parkinson's Pledge at the second World Parkinson Congress in Glasgow, Scotland on September 28, 2010, to help build a global Parkinson’s movement, to make Parkinson’s a priority health, social and economic issue around the world, and to advance the cure.

     

     



    Tell us your stories. We want to hear how you or your organization are generating awareness or having events for PARKINSON'S DISEASE.

    Email Us at: pdadvocates@aol.com


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