A Parkinson Disease Support & Advocacy Organization
Movers & Shakers is committed to the Support, Education, Outreach & Encouragement of the Parkinson's community through our Programs & Cooperative Network of Caregivers, Medical Practitioners, & Legislators to enhance the quality of life of those affected by this disease.
Parkinson's Day of Action
Parkinson’s Day of Action
Wednesday, February 26, 2014
On Wednesday, February 26, between 9:00 a.m. – 5:00 p.m. ET, Parkinson’s leaders from across the country will be on Capitol Hill. Voice your support for Parkinson’s research and services by calling Congress on February 26!
Join PAN by dialing the Capitol Switchboard:
202-224-3121 to be connected to your Senators 202-225-3121 to be connected to your Representative
It’s easy! Here’s what to say:
My name is [YOUR NAME]. I live in [CITY, STATE] and I have/my loved one has Parkinson’s disease.
The Parkinson’s community asks you to support a full repeal of the Medicare Therapy Caps and to increase funding for the National Institutes of Health, the Department of Defense Parkinson’s research program, and the Food and Drug Administration.
I look forward to hearing from you concerning your support. Thank you.
Want to learn more about these topics before you call your Members of Congress? Here’s more information on the issues of Medicare Therapy and federal funding:
Help Spread the Word! On February 26, we would love Congress to be talking about Parkinson’s disease all day long! Encourage your friends, family, support groups, and community to participate in the Parkinson’s Day of Action. We’ve created Day of Action Flyers, including state specific flyers, to help you spread the word to your network. Download your state flyer today!
The overwhelming joy of seeing old friends and the joy of making new ones.
For me, the pride of being able to volunteer to work with the Parkinson's Quilt again. 42 Panels, 16 blocks each, with a story behind each one. It was the person who would shyly come up to us and ask us for help in finding their block, the one they made for their loved one who has since passed away. Or the woman who is now confined to a wheelchair but loved her shoes and that was what her quilt block was about was her shoes. Sometimes, I had to go and excuse myself to go cry a little... or
It was the empowerment and pure joy of being able to be a part of the "Voices of Hope" Choir from Ireland, and the Mob Choir. The song, "Something Inside so Strong" still plays in the back of my head.
The presentations that gave us hope that doctors and researchers were REALLY listening to US!! The ones that have this really nasty foul disease!!! and just maybe going to do something about it....
Of course none of it would have been worth a hill of beans were it not for the fact that I was there with my wonderful husband, Michael J Church Sr. Words cannot express how he much he is the glue that right now is holding me together. Thanks sweetie!! Those are the things that I will keep in my heart for the next 3 years.... Until Portland in 2016!!!!
The Power of Advocacy
The Parkinson’s Action Network presents “The Power of Advocacy” –
an exciting panel discussion about how advocacy can make a difference for the Parkinson’s community!
“Fewer than two dozen Members of Congress out of the 535 have any healthcare experience. So, they may have heard of Parkinson’s disease, but do they really know anything about it? You can communicate facts and figures, but it’s really important to build those relationships to educate.” – J.P. Paluskiewicz, Deputy Chief of Staff to Representative Michael Burgess (R-TX)
In this video, viewers will learn:
Why it’s important to reach out to your Members of Congress;
How to ask for what you want when emailing, calling, or meeting with congressional staff;
Why finding common ground and being realistic about the legislative process can help you get what you want;
Why telling your personal story, and the impact a policy decision has on you, is so important; and
How to follow up your meeting, phone call, or email effectively and get results!
James “J.P.” Paluskiewicz, Deputy Chief of Staff to Representative Michael Burgess (R-TX)
Cynthia Rice, Vice President for Government Relations, JDRF
Israel Robledo, Parkinson’s Action Network Texas State Director
Lisa Shulman, M.D., Professor of Neurology, University of Maryland
We launched a worldwide appeal for one million people to sign the Global Parkinson's Pledge at the second World Parkinson Congress in Glasgow, Scotland on September 28, 2010, to help build a global Parkinson’s movement, to make Parkinson’s a priority health, social and economic issue around the world, and to advance the cure.
Tell us your stories. We want to hear how you or your organization are generating awareness or having events for PARKINSON'S DISEASE.